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Reducing sun exposure even in the intense Tanzanian sun.
Those with albinism also face a deadly enemy in the hot equatorial sun. Because people with albinism lack melanin, their skin is completely defenseless against dangerous UV rays. Most Tanzanians think sunburn, wounds, and skin cancer are an unavoidable characteristic of albinism itself, so children continue to play outdoors through the hottest part of the day. In addition, 90% of adults work outdoors as subsistence farmers. Even for people who recognize the danger of the sun, dire poverty means there is little money for going to a doctor, and it is nearly impossible to buy wide-brimmed hats, protective clothing or sunscreens. With proper care, people with albinism can live as long as anyone else. But in Tanzania, more than 80% die before their 30th birthdays, and less than 2% survive past 40 due to misunderstanding and poverty.
Prevention, early detection, and treatment are key to maintaining healthy skin.
When we do village education, the local people with albinism are eager to learn how to protect themselves. We meet with them and talk about exactly what they can do: stay in the shade during the hottest part of the day, wear a wide-brimmed hat, long-sleeved shirt, long pants or skirt, and socks. We also encourage wearing sunglasses to protect their eyes. We provide these items when we can, as well as sunscreen to use on their face and hands. We encourage PWAs to attend local skin cancer screenings regularly and partner with local and international dermatologists to offer screening and cryotherapy in schools and community centers.
Help us get sunscreen and hats to all our families with albinism.
Preventing skin cancer involves a variety of educational and resource-allocation projects. If you are visiting Tanzania and have extra sunscreen when you depart the country, consider giving it to our organization. Have friends going on safari? Encourage them to donate their wide-brimmed hat or excess SPF while in the Arusha Region, where most safaris depart from. Contact us to learn more!