We seek to solve the larger problem - discrimination against persons with albinism - through grassroots community engagement. By creating communities where PWAs can be active, present, and loved, we effectively destigmatize the condition for the present community. If we can keep doing this, discrimination will dwindle as people come into contact with someone with albinism, realizing they are real, human, and valuable.
Pursuing God's calling to be radical peacemakers.
A simple way we utilize community awareness is through universal care and peacemaking. By caring for neighbors, friends, and strangers of all skin colors, we come into contact with more and more people who can then learn from someone with albinism. By caring for the families of students with albinism, we make them feel valued—not tainted—by their connection to albinism. With this subtle community awareness, we naturally increase interactions between non-albinos and PWAs. In our opinion, a relationship is the best kind of community outreach.
Changing minds, hearts, and actions.
We partnered with the Tanzania Albinism Society in the city of Musoma to develop a series of village workshops designed to build community understanding of albinism. We called the project Watu Kama Sisi, Swahili for "People Like Us." We designed and produced and participatory video and accompanying curriculum with three main goals:
Change Minds: Dr. Nelson Rowwa, a Tanzanian doctor trained in Western medicine, and two traditional healers, Yusufu Nyakiriga Nyakilangani and Ally Hassani, emphasize the fact that albinism is inherited, dispel myths associated with the condition, and emphasize that in every other way, people with albinism are "people like us." The traditional healers end with this message: "Don't be deceived by our brothers who tell you body parts will make you rich; it is a lie."
Change Hearts: The video also introduces seven people with albinism from all walks of life, all with different accomplishments and challenges. The palpable pain caused by the stigma and discrimination is evident in the clip. Each workshop generates intense interest and many questions due to the emotional and intimate look at life with albinism. At the end, we brainstorm with villagers to come up with one thing they can do differently based on what they have learned.
Change Actions: Through this new knowledge, we hope the village participants will change the way they interact with albinism. Whether apologizing for past harm, making an albino friend, or sharing this new insight, we are here to help them continue to change their actions.
Community education is a low cost, high impact way to fight stigma and discrimination against persons with albinism. Contact us for more information or questions.